K Update
K has been improving steadily since Christmas. We haven’t had to use the wheelchair for weeks and he’s even walking to & from school by himself. Yay!
He’s still on regular painkillers, meds & the lidocaine patches but no TENS machine (which was something of a worry in school). No pain apart from the odd spasm that only lasts for a few seconds instead of an hour. The difference in him is amazing. He wants to go back to dance classes and everything but we’re being a lot more cautious.
We’re going back to see his original surgical consultant on Feb 14 and the pain consultant on Feb 21. It’s the second appointment that’s the most important. We’re hoping that we’ll get the go ahead to stop the lidocaine patches but that the pain support team will keep monitoring K for a while yet.
I still have a nagging feeling that the pain might be linked to growth spurts and that K might be just going through a no-growth period. I’ll be far happier when he’s had more than 3 months without pain…
A cautiously optimistic yay. 🙂