School Play
K has a part in his first major school play. The play is Beauty & the Beast and will, I assume, be a musical.
He had an audition about two weeks ago (when he was apparently told that he had a beautiful voice) and found out that he’d been given a part a few days later. Rehearsals are now about to start in earnest with the play scheduled for performances in July.
Still Pretty Good
K is now into his second month of almost no pain!
We did have a hiccup 2 weeks ago when the stomach pain returned with a vengeance. I thought he’d have to go right back to just one lesson in school each day but just as we were going to start that routine all over again, the pain suddenly stopped again.
He still has back pain but it’s not too bad & after having it for almost 5 years, he’s well used to coping with it. In fact, he felt so good last week that he joined in the PE lesson last week — a double lesson of team athletics.
Not A Good Day…
K has been really bad today. š The pain is so severe that he can’t even walk slowly across a room without help and he is constantly tired. Even going out in the wheelchair isn’t an option as the slightest bump or uneven piece of ground causes yet more pain.
What Is it With Schools?
I’m not convinced that K’s school understand how terribly debilitating his pain is. And — given that this is a school that is supposed to specialise in supporting children with physical disabilities — they aren’t being as supportive as I hoped they might be.
